i just want normal.

I'm worn.  Really worn.  And I miss normal.  I cannot begin to tell you how much I miss days of teaching and coffee and "what's for dinner" and racing to ballet.  And I cannot believe I let myself get stressed out over those days.  I wish I could go back and tell that Rachel to relax and enjoy the gift of normal....


Samuel has been running a fever for the last two days.  In fact, at one point today, it hit 104.7.  Since his immune system is compromised I wasn't supposed to let him go for two days with a fever.  So off to Urgent Care.  They wouldn't see me.  His fever was too high and they sent me to the ER that was attached.  So I walked back to the ER and waited to be seen.  They gave him a double dose of meds and it took about 2hours for the fever to drop.  They did a chest x-ray and saw some fuzziness -- not enough for meds -- but possibly an infection.  I was told to watch him very carefully and to go to the Childrens Emergency Room if anything at all changes.  His case was too complicated.

He's 16months old and has a complicated history.

Sigh.

So now I wait. And wonder.  He was super unsteady after coming home from the ER -- he kept falling and his little legs would give out.  I'm hoping it was simply due to the meds -- his body didn't feel like he had a fever, yet his body didn't have the real energy to "do life."  He's also lost close to a pound since last week Friday.  Yet, he's eating.  Lots.  His body is just not processing food.

So I feel like I want to whine tonight.

I just want him well.

It's not whining.  It's more the heart of a momma that hurts right now.

I just want normal.

Just for a bit.

But more than normal, I just want my Samuel well.

That's my prayer.